Things That Amuse You

[old goat]

This only amuses me in a sick way. But yesterday they announced that with genne editing they've found a cure for Sickle Cell Anemia, which is a terrible painful disease which mainly affects black people. A cure! Don't tell me we're not looking out for our black brothers and sisters!

Oh by the way the treatment costs $2.2 million and insurance won't cover it.

w.t.f.

I think this may be one that the courts sort out. Given the prognosis of the disease and the lack of effective treatment I suspect the insurers may be forced to pay for it. The people in states that refused to expand medicaid may be SOL though. The treatment is FDA approved which means not experimental, and people with SS can't be excluded from insurance or the condition not covered, under the ACA. (Thanks Obama.) Maybe I'm overoptimistic.

[Cisco Kid]

Sickle cell on SNL

[Core Shot]

There’s a yankee swap thread somewhere.

But that was funny. Thx. Boogie woogie Santa for the win.

[Boissal]

I think this may be one that the courts sort out. Given the prognosis of the disease and the lack of effective treatment I suspect the insurers may be forced to pay for it. The people in states that refused to expand medicaid may be SOL though.

Estimates of the total insurance cost for managing SCA over a lifetime is around 1.7MM. Once the price of treatment gets negotiated down (to 1.6MM or so) insurances will happily pay for it. That's how the cost of the first HepC cures were set, as long as the immediate cure cost is less than the chronic management cost, it's a win for them, however heinous the cure price is.

[Buster Highmen]

[old goat]

Estimates of the total insurance cost for managing SCA over a lifetime is around 1.7MM. Once the price of treatment gets negotiated down (to 1.6MM or so) insurances will happily pay for it. That's how the cost of the first HepC cures were set, as long as the immediate cure cost is less than the chronic management cost, it's a win for them, however heinous the cure price is.

It's a lethal disease with no other treatment. With the drug FDA approved, not experimental, I don't see how an insurer can refuse to cover. Refusing to cover may be a bluff to get the price down--if the treatment isn't covered they won't sell any at that price. There's probably some negotiating going on but bottom line is an insurer can't refuse to cover an approved therapy unless there's an althernative.

[Mustonen]

My stepdad was in hospital recently and unexpectedly. Looks like he’s gonna be ok, though had a bit of a scare and he’s going on his second week in the hospital (first week was in the ICU).

That whole side of the family is super religious and very conservative. They started going on about how this would financially ruin my mom and stepdad, etc etc, until I suggested that probably they were fine because of out of pocket maximums.

“What’s that??”

Oh let me explain to you what was actually in the ACA besides them trying to take our guns….

[Lvovsky]

It's a lethal disease with no other treatment. With the drug FDA approved, not experimental, I don't see how an insurer can refuse to cover. Refusing to cover may be a bluff to get the price down--if the treatment isn't covered they won't sell any at that price. There's probably some negotiating going on but bottom line is an insurer can't refuse to cover an approved therapy unless there's an althernative.

My insurance dropped specialty meds for my kid. Their “price” is $1200 for 30 day supply. A nicely worded letter informed us that it was done in our interests “to keep plan affordable and be able to provide excellent service.”

Secondary insurance (medicaid) should cover it. So the taxpayer will pick up the tab for insurance businesses failings.

[J. Barron DeJong]

My stepdad was in hospital recently and unexpectedly. Looks like he’s gonna be ok, though had a bit of a scare and he’s going on his second week in the hospital (first week was in the ICU).

That whole side of the family is super religious and very conservative. They started going on about how this would financially ruin my mom and stepdad, etc etc, until I suggested that probably they were fine because of out of pocket maximums.

“What’s that??”

Oh let me explain to you what was actually in the ACA besides them trying to take our guns….

Nice of the death panel to spare him for now.

[skaredshtles]

My insurance dropped specialty meds for my kid. Their “price” is $1200 for 30 day supply. A nicely worded letter informed us that it was done in our interests “to keep plan affordable and be able to provide excellent service.”

Secondary insurance (medicaid) should cover it. So the taxpayer will pick up the tab for insurance businesses failings.

bUt wE DeFiNiTeLy cAn't aFfOrD SiNgLe-pAyEr!!

[MontuckyFried]

What a deal! I'll take 3!


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[Buster Highmen]

[old goat]

I'm amused that the only threads I follow regularly are Things That Amuse You and Shit That Annoys You. Or should I have posted that in the Shit That Annoys You thread?

[riser4]

I'm amused that the only threads I follow regularly are Things That Amuse You and Shit That Annoys You. Or should I have posted that in the Shit That Annoys You thread?

I'm amused

[JimmyCarter]

I'm amused

Yeah but this thread is not about things that amuse YOU, it’s about … well fuck.

[Supermoon]

“Spirit Airlines has apologized after it mistakenly put an unaccompanied 6-year-old on the wrong flight during the holiday season travel rush”

https://x.com/Phil_Lewis_/status/173...655093937?s=20

People who thought Home Alone couldn’t happen in 2023 didn’t take into account Spirit Airlines

[Core Shot]

Hazing. People that allow themselves to be brutally hazed amuses me

https://www.thelocal.fr/20231228/fre...oubling-hazing

I don’t care how awesome the job is. I’m not having a carrot shoved up my ass and being tied naked to a chair with an apple in my mouth.

[MontuckyFried]

LMAO! That was beautiful. It's exactly what the internet was made for.

[MakersTeleMark]

[::: :::]

abbreviated neighborhood amusement TR, portland edition

dump truck got familiar with the soft shoulder near the forested compound

a towing/rigging crew were on the scene within minutes on what is a holiday week for most

Turns out it was the water bureau who dumped a full load in our local waterways

[caulfield]

^ impressive recovery on the impromptu side dump

...People that allow themselves...

maybe in 2024 we stop victim blaming? getting paywalled on some random french site amused me though

[::: :::]

80s ski movie nostalgia, italian-style
cortina, mecca for saucy lodge antics on christmas holiday



NYT article unlocked:
https://www.nytimes.com/2023/12/30/w...smid=url-share

[evdog]

Found on the list of "Things we do not accept" while researching where I can donate household stuff. People would actually try to donate these???

Over the counter and prescription medications
Used syringes
Used cosmetics and toiletries

[ötzi]

New syringes are fine though.

[MakersTeleMark]